The democratic problem in the knowledge society of today: Rare Disorders Denmark’s documentation strategy

Knowledge society In the knowledge society of today, scientific knowledge is considered as objective and based on evidence, while experience-based knowledge which relates to patients and their organisations is considered as subjective, based on emotions and self-interest. Thus, experience-based knowledge does not fit the norm of scientific knowledge and informed decision making. This may be even more dominant within healthcare. It reflects a democratic problem as it can be regarded as a structural censorship that some kinds of knowledge is reflected to be truer than others. Knowledge production by small NGO ́s is disfavoured, since they do not have resources to produce evidencebased knowledge. Furthermore, the conditions to create evidence in small populations are difficult.